The Waiting Game – Infertility & Crohn’s

Much like my previous week, this week was filled with more waiting.  Waiting for follow-up phone calls, waiting for test results, waiting for doctor’s appointments, and waiting for procedures.  This week was all about waiting and scheduling for me. Oh, fun!

Last week, as I mentioned in So You’re Sayin There’s A Chance, I was told to get my hormones checked, and that another Trans-Vaginal Ultrasound would be needed. My fertility doctor, Dr. A, told me that I could “come in anytime for testing”, and that I would be “contacted to schedule the ultrasound”.  When I went to the health clinic on Tuesday, I arrived at the blood lab and explained my case to the receptionist. She looked at me like I was a complete idiot and inconveniencing her, and told me there were no tests requested for me, when Dr. A specifically told me I could come in this week, with no worries.

Since their office had already left for the day by the time I arrived, I was going to have to wait until tomorrow morning to give them a call.  Dr. A had told me that I could get these hormone tests done on day 3 or 4, so I was going to have to make sure to call them in the morning and have the test done THAT day, or else, we were going to have to wait another month before I could get this done.

I called their office the next morning, only to find out that I could have my blood drawn in Georgetown, which is significantly closer to me. The Georgetown Hospital offers blood draw 24-7, so I could go there anytime.  So, my day 3 blood was given on day 4, I am not sure if that affects the hormones slightly or not, but it was way easier than going all the way to Lexington 2 days in a row.  I did get a new medical bracelet for my garland, so you could say it went well. (See My Crohn’s Journey)

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Another Bracelet to add to my collection!

I also tried to schedule my Ultrasound with Georgetown, instead of the VA, but it seems that my approval was “bounced back”, and it needed a second approval before the procedure could be done.  These appointments are contracted under the Veterans Choice Program, and they can take weeks to get the paperwork right and get the right appointment scheduled.  I had one done last September, but I guess they have to ‘see it for themselves’.  Ha!

For one of my previous appointments, they had me scheduled to see a completely wrong doctor, and I waited months!  When I called to see if there was an earlier appointment, only then did I find out that I was scheduled to see the wrong doctor!!  So, I went ahead and scheduled myself for June, with or without the approval paperwork in hand; I refuse to wait more than that, considering all I do is wait.

It’s been exactly 1 week since Dr. A gave us fertility hope, and we have been planning for our September IUI as much as we can.  We have started a ‘baby fund’, and a budget for our savings plan.  We have thought about doing our IUI as soon as we can afford it, but September is a good goal for us and gives us time to prepare.  I got my Clomid and Ovidrel prescriptions filled, and now we wait to use them.  I received the Meds today! I’m sure Philip is going to look forward to stabbing me with the needle as much as I will. Ha!

Laughing and Infertility - The Bump:

I also filled all of my other prescriptions, like my lotions and body washes from Dermatology, and my Prenatals and Acyclovir from Primary Care.  I’m still waiting for 2 of my hand splints and Paraffin from Occupational Therapy.  I’ve been wearing my nighttime braces to bed, but once I wake up and use my hands, they begin to hurt again.   I know, my life is so exciting filling prescriptions, calling doctors, and whatnot.

 

I should receive my Pap and hormone results sometime within the week, and our repeat semen analysis is in 10 days!  I am hoping that the original results are wrong, but they’re probably right, considering its a clinic focusing on fertility and all.  Hopefully, my hormones aren’t all crazy, I don’t know what our options would be if there was a female-factor for infertility, too.  If there’s not a female-factor, I may look further into donating my own eggs.  Just knowing my feelings through this struggle, it makes me want to help other women who are going through the same thing.  If they can use my eggs to fulfill their family wishes, why not?  If it were myself needing those eggs, I would consider using them, so why not offer mine? Same same.

same-same-but-cheaper

My Migraines, they are the worst.  I receive 9 Imitrex pills a month, and I am allowed to take up to 2 per day.  When I start to see ‘bright spots’ or flashes of light, I take one. If it doesn’t subside within an hour, I am allowed to take another, but no more. I find myself running out of the Imitrex within the first week or so, so I’m left the rest of the month to ‘fend for myself’.  I asked my primary care doctors about getting a larger prescription, because in one week they’re gone, and they suggested seeing Neuro for a consult to get my head scanned – Yay! Another doctor to add to my collection.  That consult is scheduled for July 28, 2 months away: Remember, I have told you before, the VA healthcare system takes FOREVER to be seen.

My Crohn’s disease hasn’t gone into remission, and the Budesonide seems to be a failure. I have 13 days left on this 90-day treatment, and my bowels haven’t changed. I’m sure you’re all tired of hearing about them, so I try not to dwell on them.  The Double Balloon Consult is scheduled for July, so who knows when I will have to go all the way back to Indiana for the actual scope.  (See My Crohn’s Journey and Another Week)

I will see my GI doctor, Dr. B, sometime this month, hopefully, to see about the new medication that will help my disease. I have called to confirm, but I haven’t received a call back yet – it’s been over a week, but I know he usually only works with the VA on Saturday’s, so I’ll give him some leeway.

I am trying not to get TOO  excited for anything, but I have to maintain positivity through the worry and the waiting. I know with time, my emotions are going to run crazy with what-ifs. The closer we get to our Baby Fund Goal and September, the happier I will get, but I have to stay calm.  I can’t over think or over hope, but it’s hard not to.  I thought about having an Insemination party before we ‘do the deed’, that would be fun!!

I know, it is not very exciting, but for me, it’s chaos. Trying to get these appointments made take about as long as it does to be seen.  Then multiple appointments are required, which, in turn, require more paperwork and approvals, which means, even more waiting and playing phone-tag with doctors.  All the while, my body still sucking.  All the while, I’m getting my hopes up and then getting my hopes let back down.  All the while, wondering what’s wrong, wondering what can be done, and, wondering what will be done in the future.  Waiting and wondering is the worst part.

But, I suppose, It Could Be Worse.

Thank you for reading about another week in my life.  I’ll hopefully have more information by next Friday, so stay tuned.

More Info On Crohn’s Disease at www.CCFA.org & CrohnsandColitis.com & crohnsdisease.com

For more information about infertility and the VA, please visit Resolve & VA.Gov

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QM3 FORNOFF – USS BLUE RIDGE MARCH 5 2008

 

Friday Photo: I wanted to start doing this, so you get to know Me (& Phil) better if you don’t already know us. This photo is of Me, circa 2008.  I was ‘Bearing Taker’, and would relay where landmarks were, in relation to our ship.  If I saw a lighthouse, the ship would use it as a navigational guide, to bring us in or out of port, via my bearings being taken every few minutes.  I am so short that I had to get my own personal step-stool to stand on so that I could see out of it!

Follow Me On Pinterest or Facebook for Daily Updates!

Baby Horsley Fund is Now Open at Go Fund Me

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Previous Posts:

So You’re Sayin There’s A Chance
5 Things You Shouldn’t Say
Infertility Is A Sadness
No Little Lamb’s For Mary
What Am I Afraid Of?
The 3 People You Meet After Diagnosis
The Last Time I Cried
Infertile Myrtle & The Nurse Who Assumed

Also Found:

The Mighty & Huffington Post

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6 Comments Add yours

  1. Northwest Mamahood says:

    I totally can relate 🙂
    Continue to stay positive.

    Liked by 1 person

    1. I m always sad when others can relate. Fingers crossed for good luck to you!! 🍀🍀

      Like

  2. beeseeker says:

    Such honest writing; you have my respect and best wishes.
    I am here in good old England.
    Intrigued:
    How does health care work over there?
    In any case?
    In cases such as yours?

    Liked by 1 person

    1. Thank you, and to you as well. Healthcare is different here, based on what job and benefits are available. For myself, I was in the military, so most healthcare is free for me. For others, you can pay monthly or yearly for coverage, it can be offered at work and for discounts, it’s mandatory to have the coverage.

      Like

  3. Sherry says:

    Mary, any suggestions for good GI in Lexington, Ky for almost 18 daughter? And hospital opinions? I know you go to VA but needed some insight, from Georgetown, ky here. Sherry

    Liked by 1 person

    1. Sherry, if you have a choice, look into UK’s Elizabeth Holt. She is a gastroenterologist and has read both of the capsule endoscopies I have done to lead to my Crohn’s Diagnosis. I truly like her and I hope she can possibly help you. http://ukhealthcare.uky.edu/physicians/elizabeth-holt-md/#tabsToAccordion2

      Like

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