Something About Mary

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20 Comments Add yours

  1. David says:

    Hi Mary,

    I saw your post on the Crohn’s Disease & Ulcerative Colitis Support Group Facebook page. You mentioned that Crohn’s has no cure. True, but I’ve had fantastic results with my Ulcerative Colitis from drastically changing my diet. I’d be interested in connecting to share my story. My wife and I live in Louisville. She has a food blog where I am just starting to provide background info on what has worked for me. Please reach out when you have a chance.

    You can read about me at https://abrb.us/SAM-About-David and my first blog post at https://abrb.us/SAM-Baked-Sweet-Potatoes.

    Best Regards,

    David

    Liked by 1 person

    1. David, thank you for reaching out! I am always open to connecting with new people! I am happy to read that you have found relief, something very hard to find for me! I’d be happy to chat, although my Crohn’s seems to not have any rhyme or reason to it with foods thus far. I look forward to learning more! I am on Remicade, too. – Mary

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      1. David says:

        Hi Mary, thanks for getting back to me. I read through your four Remicade posts today. They are great background information for anyone that will have to get the infusions. I was sorry to not read about any symptomatic relief from the Remicade in your 2, 3, and 4 posts. I have been on Remicade every 6-8 weeks since 2005. Remicade never helped my colitis, but it helped my ankylosing spondylitis almost immediately. Although I would like to stop taking it, I am terrified that my arthritis will come back if I do. How long are you going to try the Remicade? Like my doctors, it sounds like yours are more than willing to try different drugs. But have they ever asked you about your food intake? I would really like to work with you on a food based solution to your Crohn’s. We would start by having you make a diary of everything you eat and drink for several days. We can then talk about what might be good and what might be bad. Then we can talk about designing a meal plan for an entire month. Unfortunately, you would have to temporarily give up coffee which seems like one of your mostest favoritest things, but it could be worse.

        Liked by 1 person

      2. Thank you, too! And for reading my blog posts. I do love my coffee. And I already keep a good journal, I’d be happy to share my diet with you. I’m glad the Remicade could help you a little, I am still hopeful. I’d be happy to talk in whatever platform is easiest for you. πŸ™‚

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  2. David says:

    It’s great that you keep a food journal!! Would you mind sharing the last week? You can email me at david@amyburnstherecipebook.com. I’m not a doctor, or nutritionist, or any type of medical professional, but my wife opened my eyes to new theories and it has changed my life for the better. I’m hoping that the same theory will help others. Food is the place to start.

    Liked by 1 person

    1. David, I apologize for the late response. I have kept a food journal for years, since it took years to diagnose, I try to document everything. I usually eat one decent meal a day, which is dinner. But I have been having such trouble with puking (since August) that I can’t eat anything beyond that. Coffee is my life saver LOL! I just recently bought some protein drinks for replacing meals. I’m not looking forward to it, but I have thought about a liquid diet to ease my guts. I am looking forward to your family theories! Really! I will email you ASAP. πŸ™‚

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      1. David says:

        No worries on the delay. I’ve got a blog post and meal prep that I’m working on today and a Remicade infusion tomorrow afternoon. Let’s plan on chatting mid-week if you have time. My schedule is pretty flexible Wednesday and Thursday morning. Please reply here after you email me just in case I don’t get the email.

        Liked by 1 person

      2. David, Sorry for the late reply, again. I will be emailing you asap with my latest week. I look forward to chatting, I am sorry I may have missed your available time. I hope your infusion went well! – Mary

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