I’ve called in sick to work, I’ve talked with my doctors and I’ve picked up medications that should help. I was given more Doxycycline, and if you remember I’ve been taking this for the Optometrist to stop eye styes, I was given cough medicine and an Albuterol inhaler. (See Optometry and Friday the 13th — Weeks 41 & 42)
This week I had to purchase yet another pill organizer case. Kitty had knocked mine off the table, medicine went everywhere in the kitchen and a few of the day’s lids broke, so it needed to be replaced. Again. After I had just replaced it in October for a larger sized one.
I had also been using a small train case for all of my medications but it was pretty jammed full, needing an update, too. I have a large metal one I use for all of my hair and stylist supplies, so I wanted one similar to hold all of my medical stuff, prescriptions, and all that jazz. I found a few online I liked but found one at Walmart that was reasonable and would work… for now… until it inevitably becomes too small, too.
Otherwise, I truly have been useless this week. I’ve been home sick around 90% of the time and in a onesie or pajamas. My fever has gone up and down and fluctuated with some all over pain and vomiting. I hope to be back to me pre-sickness-self soon. Notice I didn’t say my normal self – because that would mean no more Crohn’s for me, too, and we know that’s not happening quickly enough, either.
I’ll meet my hand surgeon next week to have my consultation about my ganglion cyst. (See Entyvio Infusion #5, Work, and Scheduling Appointments — Weeks 47 & 48) I also read in my file for my x-ray that I had a torn ligament and widening with my scaphoid and lunate bones.
Remember, I had a fall around New Years 2015 that left my hand pretty nasty looking and bruised. I didn’t think anything of it and never went to the doctor but now I am regretting that decision with surgery in the future because of it. I’ll see the surgeon and then MSK a few days later to check in. Then, another new doctor consult with Rheumatology for the allodynia.
I cannot follow up with GI until March, which is really sucky since my next infusion will be this month, in a few days actually, and I have no idea if I’ll be getting Entyvio or Stelara or what medication. I called to ask and was told they’d get back to me.
I’ve been trying to wear my glasses and my skin doesn’t look as bad as it could, I’ve lost some more eyelashes but thankfully I’ve got magnetic lashes to wear!
I will hopefully wake up feeling a little better, I have a long week ahead before my next off day.
I did write a few more articles for Everyday Health and IBD News Today, I’ll attach links to them here once available, and you can always find them on our Facebook page. I wrote about Getting Sick When You Have Crohn’s Disease and Skin Problems with IBD.
For me, It Could Be Worse.
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And as always, any information you’d like to offer up about Remicade infusions or any of my current struggles and/or issues, I have open ears and I’ll happily take any tips you have to offer!
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IBD News Today Column:
Welcome to ‘It Could Be Worse’ – A Column by Mary Horsley
Previous Posts on It Could Be Worse:
Entyvio Infusion #5, Work, and Scheduling Appointments – Weeks 47 & 48
Crohn’s Disease Essentials and Emergency Kits
Hello, just stumbled onto ur blog today…i have UC..so, admittedly different than ur affliction, but, in the same “family” of illnesses, i would say…anyway, just wanted to share some some things that have helped me over the past 18 months….now, im no doctor, ha, so, of course, but, i feel what has been helpful to me, maybe helpful to u…..first, diet..i wont go into alllll of my diet advice…but, i do feel there are some important ones, and no, u wont like it…no coffee..sucks, i miss it so much….no alcohol…no fiber….i impose many more restrictions on myself, but, those are the biggies, in my opinion ….moving on…Kratom…it is a natural tea that u can purchase on line and in some stores as well…i recommend the red vein bali strain…it works wonders for pain and digestion issues…it is incredible…take a little bit at a time, until u can find the right serving size for u….finally, marijuana…specidifically, the Harlequin strain…it is more CBD than THC..ie, it wont get u high, but, supposedly helps with inflammation, maybe true/maybe not, but, what it does help with is sleep…anyway, hope this helps…these diseases are frikin straight misery…i truly cant believe there is no cure…sucks….hope u feel better..