First shared with IBD News, I keep items in case of emergencies and essentials I think I need as an IBD patient and Crohn's disease warrior. If you're like me and suffer from Crohn's disease or IBD, you know you have to be prepared for a number of things that could happen. That's why having a... Continue Reading →
Entyvio Infusion #4 – Week 39 & 40 | It Could Be Worse Blog
Pain. Last blog post I focused on my body pains and Allodynia and not much changed for me this week. I've had pain every day. I wake up, if I'm lucky enough to fall asleep in the first place, and I'm immediately in discomfort. I wake, and urgency follows, with cold sweats, body shakes, the works.... Continue Reading →
Allodynia – Weeks 37 & 38
Allodynia. A few times I've mentioned suffering from allodynia, thinking I needed a diagnosis of it. I had moments, even days of pain. But this pain is not like normal pain. Allodynia, meaning other pain, can cause all over body pain where even the slightest touch can ache you. Wearing a t-shirt can feel uncomfortable,... Continue Reading →
Phlebotomy and Prednisone
August 25th. That was my last blog post. You know how long that was? That is another 16 days that have passed. I suppose a lot but not too much has happened in that time, and so I'll try to catch you up. See Eleven More Days. After August 25th, I started writing my first set... Continue Reading →
Eleven More Days
Since my last post, Blood Work and Birthdays, it has been 11 days, almost 12. I celebrated my birthday weekend, and then we began a couple new weeks. If you remember, I had tested positive on my last TB test, and I had to go in for new blood work. I had to go in and... Continue Reading →
Blood Work and Birthdays
Oh man. After my last infusion, I have had migraines daily. I especially suffer the night of and the next day after the Entyvio. My stomach seems to act up more and I feel generally rough for the next week after. It has been eleven days since my last post, Entyvio Infusion #3, and this week... Continue Reading →

