Hello to all!
My name is Mary and I have Crohn’s disease and Slipping Rib Syndrome.
I am a US Navy veteran, communication and journalism graduate, licensed cosmetologist and licensed phlebotomist, and a columnist for a few websites mentioned below. I am a fur mom and I write about my life.
I discuss my Crohn’s disease, Fibromyalgia, migraines, slipping rib syndrome, and, the other issues I have – like degenerative discs in my neck, skin issues, and mental health.
It took me two years to diagnosis for my Crohn’s disease. I have had three perianal surgeries with my IBD – two perianal abscesses removed and fistulotomies. I am currently on Stelara and we (my GI and I) think it is working!
My hands have had issues, with recurring ganglion cysts and pain with De Quervain’s Tenosynovitis. I have been in and out of hand braces since 2016. I have had steroid injections, physical therapy, and, three cyst removal surgeries on my left hand. I have also had tendon sheath release surgery on both of my hands. They still hurt.
My wonky ribs, I have slipping rib syndrome which causes one rib to slip up and under the rib above it. I have had a neurectomy of my 8-11th nerves on my left side. When that didn’t help, we put in a titanium plate for the costochondral dislocation for my second chest wall surgery. I got sick after, and coughing caused the plate to shift and I literally had a screw loose. The plate came out in my third surgery and a rib resection was done to remove the cartilage tip that was slipping. These ribs are a continuous battle. I’m currently under the care of Dr Adam Hansen – the leading specialist for Slipping Rib Syndrome – and I have had three procedures with him. 7th times the charm, right?
I mention using the Va hospital for all of my care and what I deal with when it comes to appointments. I also talk about PTSD, anxiety and depression and mental health. I even go into dermatology issues, problems with ovarian cysts, infertility, and any other health issue I have come across. I talk surgeries, scopes, blood tests, x-rays and more.
I enjoy sharing my journey and I thank you for reading.
It may not be easy, but for me, It Could Be Worse.
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My Crohn’s Disease Journey to Diagnosis
IBD News Today – ‘It Could Be Worse’ Column
First of all just luv u and what a beautiful soul you have… btw luv your hair😘👍.I ran across your story as I was about to post about wholefood nutrition. My heart goes out to you as I have seen your ups and downs. I have fraternal nieces…one has Gastroparesis-5surgeries/pacemaker for her stomach the other has Crohns/Kidney Stones. I do not have a magic wand to change what they have but I have to share what I have told them about. Have you ever heard of Juice Plus and how you get 30 Fruits/Veggies a day? Migraines, Joint Health, Fibromyalgia, Gastro Issues, Skin, Teeth, Hair, Anxiety, Depression, Diabetes, High Blood Pressure, Acne, Gum Disease, Auto Immune…OMG! I was amazed at what it did for me and many others! Please take a look and tell what you think…b4 you think this is a cult or trying to give you false hope it is not…I am a JuicePlus Advocate, a leader and believer in wholefood nutrition and just sharing what I know. Get back to me when you can, God Bless you, be positive and always keep glitter in your pocket❤️❤️❤️You are a FIGHTER!
I was trying to search on crohns and DQ and came across ur blog. I live with auto immune for last 20 years. Crohns since last 10 years, had TB 3 times ( remicade side effects), CMV virus, Sarcoidosis. Every 2/3 years i have something new happening so its exciting how much i can take :). Now on cancer watch ( thats latest)
Body lives on steroids and immunosuppressant. I have yet to complete reading all ur blogs.
Thanks for sharing