Busy, Busy

9 days have gone by, with life being as hectic as ever.

I’ve done a handful of new photoshoots and I’ve seen my newest favorite band a few times. I’ve recently become obsessed with Sundy Best, a local Kentucky band, and if you haven’t seen my live videos on Facebook, then you can see some of their videos on YouTube.  I’m obsessed, I tell ya.

I’ve also finished a class and began my latest course, this one being my last needed to graduate. I officially have 4 weeks of coursework left, this final class titled Storytelling, a multimedia approach. I’ve never been so ready to be finished, senioritis has taken over and I lose motivation for homework.

I did go see my Primary Care doctor this week. My lymph nodes had been swollen, and are still swollen, but after a check up I was told to take it easy and get some rest.

I had mentioned Fibromyalgia and Hidradenitis Suppurativa to Dr. C, as well as my needed follow-up for my breast lump that was found. I keep finding lumpy areas in my underarm, having at least six or seven come and go now, so I know something is not right. I wonder if it is HS or if it is Lymphadenitis.

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A referral for dermatology and a breast ultrasound was placed, so I’ll have more appointments soon enough.

I still have no clue what the plan is for my Crohn’s disease. Last I spoke to the GI nurse, she said that Dr. S had ordered Stelara from the pharmacy but pharmacy denied it, but they suggested Entyvio instead.

My next Remicade infusion would have been the 28th, so perhaps that’s when I’ll begin my loading doses.

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In the evenings I still get insomnia, I’ve been up til 6 am some mornings, so my primary care suggested Melatonin and I have been taking two gummies per night to help me sleep. Mixed with my Gabapentin for the breast nerve pain, I can get at least a few hours sleep.

With insomnia, I also get the morning to myself.  I sometimes go and get donuts and it gives me time to get back home right at sunrise, I have gotten a habit of taking pictures of them by this barn near my house. Sunrise and sunset photos have to be favorites of mine.

This week, my joints decided to act up. My hands hurt like normal but my feet hurt, too. Especially where my big toe meets my foot, the joint hurt to move and it was visibly red. Not pleasant.

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I am completely useless when I hurt all over, I even tried to take a scalding bubble bath because I love the hot water, but I ended up getting too hot. It didn’t necessarily help me at all.

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I have an appointment with MSK on the 19th – which also happens to be the same day as my interview with the VA blood lab! Wish me luck!  I will take in paperwork and begin the process towards working at the VA in Lexington.

The fourth article of my Crohn’s Complications series posted this week, Part Four: Sepsis. This series has discussed the major issues and worries for Crohn’s, and sepsis being an infection of the blood that can potentially lead to death is a serious concern. This week I’ll discuss stomas and ostomies, so check out my column here.

Given that I’ve been so busy and my body not quite healing yet, this upcoming week I will try not to let it be as chaotic. It Could Be Worse.

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Thank you for reading, and for keeping up with My Crohn’s Journey. Please Like It Could Be Worse Blog on Facebook!

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And as always, any information you’d like to offer up about Remicade infusions or any of my current struggles and/or issues, I have open ears and I’ll happily take any tips you have to offer!

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CURE for IBD:

For those of you who are continuing to donate to the Cure for Crohn’s and Colitis, I encourage you to donate towards my team page with CURE for IBD – where 100% of the funds WE raise will be allocated to IBD research for a cure. That’s right, 100%!!

To Donate:

www.cureforibd.donordrive.com/campaign/icbwblog

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IBD News Today Column:

Welcome to ‘It Could Be Worse’ – A Column by Mary Horsley

It Could Be Worse

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Previous Posts on It Could Be Worse:

Painsomniac

Vampire

Secret Thoughts & Feelings

10 Days Later

Two-Step TB Test – WK 1

Two-Step TB Test – WK 2

Better Late Than Never

Green with Envy

1 Year Anniversary of Crohn’s Diagnosis Day

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